Saturday, March 14, 2009

Excuse Me, Is There Room for Tumor Under Your Sutent?

Tumor? Two More? Get it? Even with a life-threatening illness, I still retain my status as Wittiest Male in the Yukon High School Class of 1982, no?

And like Black Flag's Roach Motel, I sure hope there is plenty of room for those malignant cancer cells to check in, but not check out.

Lee Ann and I returned from Bethesda and the NIH this past Wednesday, March 11, and I took my first dose of Sutent later that evening. Thank God, I experienced no ill effects from the new chemotherapy. The only noticeable change is a desire to listen to the music of The Backstreet Boys. I fully realize that this is probably not normal for a man on the verge of his 45th birthday, but those dudes sure do sing well together...at least on their records. I can't bring myself to see them live. Just can't do it. Nope.

I head back to the NIH in two weeks - March 24-25 - for some additional lab work and a visit to the clinic. My dad is traveling with me since the vision loss I have experienced has made me a bit leery of traveling alone. It's just the left peripheral vision, but it can still result in lots of bumping into objects and people. It should be a pretty easy trip although all of the traveling of late is becoming tiresome. And while there is no legal requirement at this point, I have decided that my driving days are over for now. It was a very tough decision to make since it involves a major loss of independence, but it was probably the right one for my safety and, more importantly, that of others. My loss is Dale's gain as I think he enjoys getting the extra time behind the wheel. Lee Ann has taken on extra chauffeuring duties with her usual good humor and grace. Don't know what I would do without her. I definitely won the lottery with her.

I will return to the NIH again two weeks following the March 24-25 visit and then again a month later. Those visits will involve MRIs to determine whether the Sutent is having a positive effect. If it is, we continue, if not, we find something else. Pretty simple.

And on we go!

Love,

Terry
xoxox

85 comments:

SallyB said...

Well, cuz, glad to see that your sense of humor is solidly intact throughout this entire ordeal. That's important to maintain at just such times. They say that attitude is 90% of the battle, and from coping with a chronically painful knee and off again, on again PT on the danged thing, I can attest to how true this is. So keep up the good spirits and know that the entire Harper/Burnell/Walker clan is behind you 110% on this!

Here's hoping that the Sutent proves successful! Sending much love and healing energies your way! Love you, cuz!

Cousin Sally in Ohio

Patty C said...

I love what I'm reading. You've got a plan and you're working it.

Sending positive vibes your way.

You sound strong and as usual, funny. Gotta have a sense of humor!

Hammer... said...

Keep fighting all the way my friend... but that music needs to be recycled - surely there must be some 1982 classic new wave you can enjoy instead, no?

Sista N Law said...

Terry,
We are all hoping that the Sutent is the one.... You are in our thought and prayers always. Keep having your great attitude... It does make a difference.

Love you,
Heather

Ray said...

Terry, our thoughts and prayers are with you too! Keep your sense of humor and positive attitude and do enjoy the sunshine.

Strude86 said...

When being ferried about, I suggest you sit in the back seat, reading (or looking at) something resembling important business papers. Further, be sure to put up the soundproof glass barrier between front and back seats. Put Dale in a grey chauffeur's uniform with smart hat and poofy trousers. It will complete the look and do wonders for your outlook. I you have to be driven, by golly, let it be in STYLE.

I admire your common-sense approach to driving, Terry, and I know it's a difficult choice to make. Kudos to you for being smart and safe.

Be strong.

D...

Jill said...

I admire your selflessness. I know it had to be hard to decide to give up driving. I do like the image of you being ferried about, harassing other cars for Grey Poupon. Keep up the good spirits and the good fight. We'll keep the prayers and positive energy headed your way.

OKIE Sam said...

Backstreets Back! You are awesome Terry. You keep me laughing and simply amazed! Keep up the Fight!

brooke said...

Sending strong, loving vibes and prayers your way. You and fam are amazing and an inspiration.

Much love and many hugs,
Brooke

Jenn Hershberger said...

Man, what a ride.
And man what a cool couple of riders.
You take it all in stride, you're funny as hell,
and I know you're dealing with more than anyone can imagine. Wish we could will healing to happen.
I'm going to try.

Take good care, Harpers.

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